Morgan and Logan sliding
Kroy and Logan sliding
Well, we travelled up to Columbus to see Logan's favorite eye doctor, Dr. Dave Rogers...He asked how the patching was going ...and we were honest...it has never gone too well...and the older he gets , the more creative he becomes in taking or "rubbing" the patch off... and to be quite honest...I have never really noticed a difference...I had been doing research on atropine drops and Dr. Dave said we could give it a try...SO...he hates the drops...we put a drop of the atropine in his good eye and it dilates that eye...in turn, forcing him to use his bad eye..I know it sound like I am torturing this poor baby...but before we do surgery, he wants that right eye to be as strong as possible.He is still thinking Logan has ocular albinism..but we wont have a definite diagnosis til he is about 3..He is thinking Logan's vision is 20/400...which is considered legally blind...I am just not quite sure I believe him...He did say this could be one of the reason's for the delay in walking...but Logan certainly has great motor skills..he is the FASTEST crawler.We go back in 8 weeks and hopefully we will get new glasses...this will be his 3rd pair and he is only 15 months old!!!
A few weeks ago I thought about turning the blog "private" however, whenever someone "googles" ocular albinism, our blog pops up...I have gotten about 5-10 email from moms whose child has been diagnosed with this condition and I enjoy telling them about my experience and different ways of keeping glasses on and different eye exercises we use...That same week a mom e-mailed me and I knew that was a sign to not go private...Hope yall all have a great week.
Hi Lee Ann,
ReplyDeleteGood to catch up on you and Logan. Looks like you guys have been having a good time. The music class sounds like a blast.
Something miraculous happened with Will's OA diagnosis. I got a call from a nurse at STL Children's and they said the evoked vision response test completed at our 3/25 appointment confirmed that he did NOT have OA. A doctor (not the one we usually see) told us that Will had OA at that same appointment. Needless to say, I am thrilled that he does not have OA, but mad that we were told that he did. I really did not think he did, but am also one to trust what a doctor says. It just seemed like he could see too well. I am not even convinced that he is farsighted since he refuses to keep his glass on and is able to see everything fine. I guess we won't really know though until he can talk and read an eye chart. According to the MD, he is still farsighted and has nystagmus, but it is not related to albinism. Now if he would only wear his glasses!
More good news, Will has started walking full time now. He did not walk until 17 months. He was late too. I know it is easier to say than do, but don't worry about Logan not walking. I know he will do it. It only makes sense that if you can't see as well it would take awhile longer to figure out. One day he will just take off.
Have a good week,
Jen